LDN started again at 4.5 mg

After a 1-1/2 month break, Michele has started again on LDN treatment as of 8-23-2007, going to 4.5mg now from her prior 3.5mg dosing.

So far, no additional spasticity/stiffness, and so far no sleep disturbances - except that last night she rolled onto her left side and nearly went out of bed. And her energy level was noticeably higher today, but with that dramatic 8pm crash that we saw during the last treatment.

Will keep this page updated with the latest and will ave videos of before and during treatment.

Cobra Venom For MS Redux - Time for Another Look

Cobra Venom for MS? Note that this very technical publication provides a good summary of the current knowledge and thinking about MS in addition to describing nicotine's effects on MS (including mention of a nicotine study that does not reflect our empirical knowledge of how it dramatically reduces the effects of Michele's version of MS) and finally alpha-cobratoxin which uses those same nicotinic acetylcholine receptors that we find so useful in ameliorating MS symptoms by hitting them with nicotine (the patch) or ephedrine (primatine mist):

(Adobe PDF document)
http://groups.google.com/group/ourms/web/CobraToxin_MS_ImmunologyReview2006.pdf

Stability - Catamenial Seizures Wane - Re-Starting LDN

So it has been two months since my last post, and I can say that it has been a good two months for the most part.

While the catamenial seizures have waned, with no aura's this past month and no seizures since my last post, Michele has been getting much more difficult to transfer since being off the Low Dose Naltrexone.

The good news is that a recent MRI showed no abnormalities in the pituitary/hypothalamus area, and showed no active lesions in any part of the brain and brain-stem. Of course the extensive MS plaques were very visible and very symmetric throughout the brain - the physical symmetry and locations of damage with this disease has to be a big clue for researchers.

So, with no current lesions, we can get down to dealing with minimizing the effects of the existing damage done in the central and peripheral nervous system.

We have an appointment with a Pennsylvania doctor to renew the prescription for Low Dose Naltrexone this next week, and we are looking forward to again seeing major improvement in Michele's mobility. This time we will make sure she sleeps well while the LDN does its magic.

We have filed a grievance with Kaiser to try to get some advanced and exceptional treatment from neurologists and immunologists who can help to understand why ephedrine, nicotine and LDN have such dramatic and valuable effects on Michele's mobility and quality of life.

If Kaiser can dispense Viagra so that old farts can sport woodies for their trophy wives, then surely some LDN for my young 30-something wife and mother of two school age children is not too much to ask.