Seizures, seizures and more seizures

So last Sunday the four of us were starting to eat a very late breakfast when Michele had about a two minute focal seizure/absence seizure. She was having a more difficult morning, where the prior week she was doing pretty well. In fact the day before, we had gone to Monterey Bay Aquarium and had a lot of fun even though she was showing some increasing signs of something going on - lethargy, sleepiness, irritability, 99 degree temperature.

While Michele was having this seizure, unable to move or talk, she was aware of us around her, and I was busily getting the Ativan/lorazepam from her backpack to put under her tongue. Then for the rest of the day these seizures repeated about once per hour to happening every half-hour. I increased her Keppra and the seizures tamed by about 9PM, although by her heart rate monitor/alarm it looked like she had about a 2 minute seizure again in the middle of the night. She has ictal-tachycardia, meaning that her seizures are usually accompanied by a fast heartrate. I designed a portable heartrate event alarm to alert me or her caregivers to her seizures - prolonged seizures can be deadly.

With the ongoing seizures and the change in meds that Michele's neurologist prescribed the next day, I chose to suspend the used of LDN/Naltrexone for a bit. Well, this week off the LDN treatments has been accompanied by severe increase in disability. I had to brush Michele's teeth today and she can't help with standing anymore. Her left arm is completely paralyzed, swallowing problems are getting severe, the left side of her face is drooping, her speech is difficult, etc.. Much of this may be attributable to the increased meds. We will know pretty quickly, as I resumed the LDN tonight, figuring that all the downer pills that she takes at bedtime should keep her sleeping well enough for the LDN to be able to do its job in the early AM.

Will post more later - Michele calls.