This weekend was great! A full day out and about on Saturday, I felt comfortable leaving my wife and 7 year old daughter at a fun-fest at our church while I took our son to his ice skating lessons. Then we all went to see Shrek 3 after a full day in the sun. We are finally becoming unbound from this disease and enjoying more freedom to get out and live.
Michele is now handling her own email communications for the first time in a couple of years, and every day she has functional improvement. When I transfer her to and from her wheelchair she is now assisting by using her legs to lift, I was used to taking her entire weight, and letting her legs dangle while moving her. No more of that, and she is standing for a minute or so at a time, just her arms holding on to me - no effort on my part to keep her up! 2004 was the last year that she could transfer independently.
I am really angry that the medical community wasted so many years of our lives on useless drugs when we can at least stop the progress with LDN, and in Michele's case see such dramatic improvement. We really do need a medical revolution - and not a socialized system - but more like what happened with the GNU software movement and Linux in the computer field.
By the way, the increased Keppra 1000mg 2 times/day seems to be keeping the seizure aura's away, and we have not seen any lasting effect from the seizure last week.
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2 comments:
Saw Michele today and she looks great. I got a huge and was so excited that she has improved strength and movement in her left arm. Best Birthday gift I got.
Hi Bryan. Al told me about your blog site and I plan to come here regularly to keep up with your progress. It was a joy for me to hear about the improvement Michele has had recently. I pray it continues and that your life just gets better and better.
Tom
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